About Us

We are a very liberal family who own a queer friendly mental health wellness business. One of us is in massage school to help expand our business and our reach in helping create a queer friendly space for people to care for their wellness needs. We are also strong advocates for disability rights in the MMSD school district and have included Leani in that at times. She has helped us speak at UW to students, Assistive Tech conferences and for the MMSD school board. Leani continually helps providers and others who work with her or interact with her think outside the box with many things. Leani is the youngest of 4 children and was a late in life "surprise". She has 3 older siblings who are out of the house and come back to visit occasionally. The oldest sibling and their partner will be having a baby in May, so Leani will be an auntie soon. We do not travel much due to the complexity of care for Leani and the stress of change that it causes for her. She has several appointments on a regular basis, which serve as outings (she actually looks forward to going to the dr and dentist, ha). Leani also loves to go run errands with us weekly to get out of the house. We will occasionally go to a museum outing in Milwaukee for a change of pace. We do not celebrate many holidays, however we do talk about them for the social aspect. But we love to celebrate birthdays. We were told Leani would not live to see age 2, so every year we like to celebrate with her in whatever way is fun for her, which often times includes staying in a hotel for a couple nights in Madison or Milwaukee. Leani is a happy 10 year old girl who has SMA. She is in a wheelchair or laying in bed. She enjoys communicating with an eye-gazer machine and working on full paragraphs to communicate. She will have a nurse or parent at home at all times. Respite is needed to help give mom and dad a break and to have fun with Leani. She loves elevators, music and being out and about. Working on Socializing skills would be wonderful. Looking for after school care after 3:00 pm,on Wednesdays and maybe one additional day during the week plus weekend hours - flexible 15 hours per week.

How You Can Help

We do not have family close by to help with things, we are older parents and do not have enough nursing to cover our full time jobs, so we are juggling many things all the time, including juggling being a parent and a nurse frequently, along with other adult responsbilities. We would love to have someone help with some Leani related errands (Leani's prescriptions and over the counter things we need for her occasionally) and Leani chores at the house (maintaining organization Leani's room, wiping down machines, organizing & stocking supplies, etc.). It would also be great to have someone do art, music, educational things with Leani while parents are maintaining regular chores and/or work in the house.